Allison's funeral will be held on Thursday, March 4, 2004 at 2:00 PM.

Levitt-Weinstein/Beth David Memorial Gardens and Chapel
3201 NW 72nd Avenue
Hollywood, Florida 33024

I miss you.

Allison Etta Bine
September 10, 1986 - March 1, 2004.
But always in my heart. <3
Behave in heaven.

I love you Allie.


She's really gone. But I haven't cried since last night. I know she doesn't want me to. I know she wants me to be glad that she's not suffering anymore. She doesn't have to be in so much pain just to breathe, something we all take for granted.

At about 6:00 pm yesterday, a Rabbi came to say some blessings with us. I have no idea what we said, but I'm sure it was good. =x

We said our goodbyes and told her how much we loved her. We told her she better behave with Monica, a CFer who died a few years ago at age 18. Monica was a lot like Allie. They were both trouble makers. ;]

It was really hard to just let go, but at about 6:30, Allie's doctor and nurse came in. The respirator was turned off. Her lungs made no attempt to breathe on their own. We still continued to tell her we loved her. My hand was resting on her shoulder and I knew she had finally made it to heaven when I moved my hand and the blood didn't rush back to that spot; it remained white. Her heart stopped beating. That was it. She had finally made it to heaven.

I think we all can learn a lesson from Allison. She never once complained about having Cystic Fibrosis. Ever. At least not to my knowledge. Sure, she'd occasionaly complain about having to take this pill or having to do breathing treatments, but she never blamed CF for it. She knew she had to deal with it. She knew that there was nothing she could do about it. She knew that complaining wouldn't help; it would only make it worse. That is what was so beautiful about her.


(no subject)

This is Stephanie again. I'm going to be updating Allie's journal for her until she's well enough to do it on her own.

If anymore trolls come to her journal, please do not reply to their comments. That's exactly what they want you to do. :/

Anyways, this is bad news, but also good news. Allie has been put on a ventilator. If you don't know what that is, basically it's a machine that breathes for you. This may seem bad but hey, every cloud has its silver lining.

While she was on the ventilator, they have been able to suction out her lungs. And boy, trust me, they have suctioned a lot of stuff out. This makes it a lot easier for her to breath, therefore fixing a lot of things, including taking a lot of pressure off her heart and letting her relax a little more. She is heavily sedated now since she's on the ventilator. But that's good because she hasn't had a lot of rest lately. And she needs it so that her body can fight off whatever. It took a lot of energy for her to breath before, but now she can do it with such ease thanks to the ventilator. I haven't seen her look so peaceful in I'd say about over 2 years. She was just lying there sleeping, breathing so easily. It was beautiful.

We're almost to the point where she gets her living lobe transplant. By about Monday or Tuesday, the potential donors are going to fly up to St. Louis and get their further testing done. There are 4 or 5 of them. Then they will select the best 2 and 1 backup, and by the end of next week she should have the procedure, assuming everything works out. *crosses fingers/prays/hopes/wishes/dreams*

If you have any questions, feel free to ask. You can comment here or email me at & I will definitely reply.

(no subject)

Hey guys. This is Stephanie, Allison's sister. I thought I'd update Allie's journal for her so you guys don't worry or anything.

Allie's news segment FINALLY aired last night on Channel Four News. It was so well put together. It was beautiful. Hopefully we'll get a lot more calls from possible donors so we can get this show on the road.

Allie has been kind of... spacey lately because of this new thing she has. It basically is a mask that helps her breath properly, but unfortunately it makes her forget things short-term-wise and such. She has to be sedated so that she keeps it on.

I was trying to think of something that would make her feel better. I think it would be a great idea if you a bunch of you guys called her cell phone and left her a message. Don't worry if you're nervous to actually talk to her, because you won't. Since she's in the PICU (pediatric intensive care unit), she has to turn her cell phone off, directing all calls straight to her voice mail. So please give her a call. Please email me for her number: . Thank you so much. <3

Stephanie - reality_fades

(no subject)

Well, here's an update. My breathing has gotten worse, they've had to up my o2 again, and we haven't been able to lower it. So, even though I'm not in any respiritory distress, they still might move me over to the ICU. I think moving me would be stressful on my body, but hey, what am I to say.?

My sugars have been dropping today. Not fun.

Last night wasn't fun either. My o2 kept dropping. Then after we got that all taken care of and shit, my feeding tube connector came loose and spilled all over my pants and bed at 4 am! NOT COOL. So I had to clean up and change and that was such a pain. But yeah, not a cool night. Linda kept me company though. She spent the night. She kept laughing at me though, cuz I was on the computer trying to keep up with commenting on everyone, and I was falling asleep at the keyboard. lol. And then again, this morning, when dad came to visit, I had my head on the pillow, I was sleeping, and had my hands on the keyboard. ;x hehe.

heh. I love you guys. <3

(no subject)

I can't even thank everyone enough. The response I have gotten has been so well! I didn't think it would go as far as it did. Wow. I want to thank everyone from the bottom of my heart. You all are to kind to help me. You all prove that there is still some faith left in humanity. Also, to learn more about Cystic Fibrosis, visit, And to learn more about transplants, visit,, again I appreciate all you have done for me.


Please everyone, feel free to contact me at anytime.

AIM- my silent hopes
AOL- alliee
Yahoo ID- woofitsallie
  • Current Mood
    indescribable indescribable

(no subject)

Since it doesn't look like they're going to air my segment. We made flyers and have been printing and posting them everywhere. And I can't believe how great the response has been!

I would love to thank everyone so very, very much. And keep spredding the word!

(no subject)

Mommy talked to Brian this morning, and he was jsut getting out of a meeting with the news people. He said it will be aired this week, no doubts, just paitence. Le Sigh. I don't have paitence!! But, I guess I have no choice in the matter. So, I'm intensely watching the news waiting in anticipation for it to air. Heh.

I fell on my naked bum this morning. It hurt! But it was quite comical. See, I had to pee badly at 7 am. So I got up, used Peter, and turned around to close his lid. Well, thats when I lost balance and fell on my bum. The floor was cold and hard, and I hadn't pulled my pants up yet. I started to cry cuz it hurt and I was fustrated and it was hard to get up. But I was also laughing cuz it was a funny sight. And I was coughing, cuz well, I was laughing, it goes hand in hand for me. So I finally was able to pull myself up, pull my pants up, press my morphine button a couple of times, and press the nurses button so I could get a breathing treatment and have her remove the pee, and tell her my story. She laughed at me and told me to call her next time so she could help me. I said no, I fully capable of doing it myself, which was a lie, my legs and knees are very weak. But oh well, I'm jsut more careful.

Frosted Lucky Charms are magically delicious.

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